Sunday, June 29, 2008
One Year Ago Today...
I now notice things that I once didn't. Today for example I noticed this man's hands at our baseball tournament. These paws were rough. They looked as if he had broken his fingers, smashed a few fingernails, and changed more then enough motor oil. (Bare with me for a moment because this is going somewhere.) As this man put his other hand on the bleacher I noticed his thumb was missing. Ouch! I then looked at his family. He had his wife, his daughter who was roughly Kay's age, and his son. This father had a t-shirt on with his son's uniform number on it. I watched him for a minute. This stranger was interacting with his kids. He was a good father from all appearences. I went back to his hands. These beaten digits were that way because he was providing a life for his family. He was working with his hands somewhere to pay tournament fees. He was aquiring arthritis for the fancy sunglasses his daughter was wearing, and for the flip flops his wife was sporting. I saw family when I saw his hands. This disease has made me look past the cosmetic appearence of a man and his tortured hands. It has made me admire a man for the hard work he has endured to provide for his family.
Please enjoy my retro writing and please consider helping me find a way of getting Kerry Magana's grandma here:
Almost 15….What really matters? A question that can produce so many different answers. I’m not sure what my answer would've been a week ago. To be honest, I really wanted to own a Bentley Continental GTC in the next year or so if I hit the lottery. A custom chopper. A lake home. I thought those things mattered. I thought status was important. But a week later I can tell you its health. A healthy child. A healthy child that you kiss goodnight as you tuck them into bed.My name is Michael Quijas and I am sitting next to my daughter as she fights for her life. Seven days ago my daughter was admitted to the University Hospital in Columbia, MO for symptoms of Leukemia. That was Thursday June 21, 2007. On Friday June 22, we were delivered the bad news that she did test positive for Leukemia and treatment had to start immediately.
The whole event was surreal and a week later it is still numbing. I am coping, crying, and questioning everything. Why? Why my little girl? What did she ever do in her short little life to deserve such a devastating diagnosis? The doctors & nurses tell me it’s a process that every parent goes through but I still have questions and anger.My first day, technically before the official results were in, I had hospital staff tell me how sorry they were. The doctors, nurses, & even the receptionist expressed condolences. I was confused. Why the hell are these people giving me sympathy? I didn’t want it, they could keep it.I have to do something theraputic while I sit here so I've decided to document my experience.June 24, 2007 11:43 p.m. - I am sitting in a hospital room at University Hospital in Columbia, MO.. Room 6-E44 to be exact. The time is 11:43 p.m. and I am fighting a battle with my daughter. This battle is against leukemia. This battle started three days ago on June 21, 2007. The news or I should I say diagnosis came in around 8:15 p.m. and it was like a hammer hitting me in the head.
I was at the hospital for a shot, pill, or Tylenol. Not the news that my baby had Leukemia. We wanted to spend an hour at the most getting some quick fix and head back to our baseball tournament. But life has has a way of throwing a curve ball.Kaylee Marie Quijas was born on July 12, 1992. I’d like to say she weighed 6.6 oz. but it would only be a guess. I do know she was born in the afternoon and it changed my life forever. I swear I have never loved a girl as much as I love my baby Kaylee. It was love at first sight.It is eighteen days until her 15th birthday. This is the summer before her sophomore season in high school. Almost fifteen! The sad thing is that I can not do any thing to ease her pain.We started chemotherapy yesterday and it has demolished my baby girl. She is so sick that I can not recall being in the presence of anyone as ill as this little angel. Her spirit is at its lowest and I’m scared. I’m scared that her low immune system could allow a simple virus to ravage her defenseless body. I’m terrified that her body, or her almighty father God, might decide to call it quits. The worst nightmare a parent could ever have.June 26, 2007 12:05 a.m. - Today has been a better day for Kaylee. She is still sick and weak but was more alert then yesterday.June 26, 2007 9:10 p.m. - Our day has been exhausting. Visitors are coming left and right and we are trying to entertain in a sense. The drive here is 2 hours long. So when some one travels that distance to see you, you feel obligated to meet & greet but we are worn out. The support from our family and friends has been incredible.June 26, 2007 11:48 p.m. - I just arrived at the Ronald McDonald house. I feel grateful to be accepted into the house but would give anything to be at home with Kaylee. I keep having negative thoughts about Kaylee’s recovery. I’m optimistic about her improvements but concerned about her ability to fight off infection and virus’. I will keep my concerns to myself.June 27, 2007 11:06 a.m. - My night went rather well considering I slept in the Ronald McDonald House alone. I was unfamiliar with the surroundings but felt blessed that I had a place to sleep. I am amazed at the “workings” of this whole illness thing. There are people to comfort you, people to feed you, cloth you, house you, assist you, and almost anything and everything a family might need to cope with this terrible disease called cancer. I am making a commitment to contribute to these organizations when I can do so.June 28, 2007 11:37 a.m. – Today Kaylee is looking spectacular! Her color and skin looks so much better. She is still sleeping. Exhausted. Worn down. Beat up. But she was told that if she doesn’t start eating and drinking she will not be able to go home.Her resilient spirit is second to none. I am so proud of her and her strength.June 28, 2007 9:13 p.m. – Sometime today around 3:00 p.m. the doctors came in to tell us or advise us on a certain “situation”. It seems that Kaylee's liver is having troubles. It is irritated and unhappy and should rest. But the treatment (chemotherapy) she needs today will in all probability upset the liver even more. But if they delay treatment for the cancer it will continue to grow and her life would be in grave danger. But if we did delay treatment it would give her liver additional time to heal. We all agreed that extinguishing the cancer is the top priority and we can only pray her liver will survive and rebound. We’ll just cross that bridge when it comes.
June 29, 2007 9:20 a.m. – I took Kaylee for a stroll in the wheelchair today.She had herself an egg & sausage biscuit in the cafeteria. Chocolate milk washed the two bites down. Her eyes are bright yellow from the unhappy liver. She is so beautiful even when she looks sick. Her manners have never disappeared even though she can hardly talk. It is always "thank you."I also took Kaylee outside for a minute. I needed the wind to hit her face. I wanted her to hear the birds chirping. It is those little things that we take for granted every day. I love my daughter more than I can say.
Saturday, June 28, 2008
Grandma: Part 1
My name is Michael Quijas. I am a proud father of a young 15 yr-old girl who is fighting cancer, leukemia. We were diagnosed on June 21, 2007. This last year was very hard and unpredictable. We have been fighting for our daughter's health and have had to dig dip inside to get through certain days. We were blessed with a strong family, with friends, and community that rallied behind us.
Along our journey we made friends with other families battling similar sickness in their kids. I write you tonight about one mother in particular, a mother that is struggling to keep her family afloat. Her name is Claudia and her beautiful daughter's name is Kerry Magana. Claudia is a single mother with 3 kids. She has no family or friends to help her. Until recently she had been riding the bus to work, she has walked to Children's Mercy Hospital from East KC, and she has had to let her sick daughter ride the bus alone to get her chemo in the clinic. Since Claudia is the only provider in the home she is forced to leave Kerry daily so she can work to keep a roof over the family's head. She needs help, she needs your help.
Kerry's grandmother lives in Honduras and has tried unsuccessfully to get a Visa to come stay with the family until Kerry's bone marrow transplant is complete. They deemed Kerry's case not an emergency. As a father who has a child battling the same disease, it is an emergency. This little girl is fighting alone daily with no one to over see her taking her meds, (with blood disease you could sleep all day and not even know it), the bone marrow transplant requires that this little girl stay hospitalized for 6-8 weeks following the procedure. There needs to be someone there with her. Right now Claudia has to be at the hospital every Wednesday to sign off on the chemotherapy that Kerry receives. She is at risk of losing her job due to the demands of this disease. She needs someone to help her, someone like her mother, someone to bring comfort and assistance like only a mother can. As my Congressman, as a Congressman who's a father, a grandfather I ask you to please lend your help, your hand in saving this beautiful little girl.
We need a Humanitarian Visa for this little girl's Grandmother. Please help me help them. The Guadalupe Center has been blown away by this Mother's story and is requesting an application from Mr. Ruiz. Please take a look at this application and let us know what can be done through your office/resources.
I own a TV channel - InAd TV - that plays Kansas City's top restaurants, nightclubs, and entertainment venues (The Power & Light/KC Live). If I can ever help with a cause, an event, or a campaign please know I'm here for you! Please give me a call or an email and I can give you more details or info regarding Kerry Magana.
I'm a blessed man because I can provide my family with the tools, resources, and time needed to fight this thing as comfortably as possible. I'm blessed that I get to have my wife next to my daughter daily as we fight our sickness. My wife and I both have the luxury to rub our daughter's back as she gets so sick. Imagine if you were a parent and couldn't be there for your child. I only hope we can help because if by chance this little girl passes away I don't want this mother to have any regrets! I want grandma here so she can rub the back if mom has to work.
At first I thought why would God give this to us. But now I know. He gave me this so I might help others. I just created a non-profit called - 10 Kids Insured - that will insure children lacking health care in programs such as Operation Breakthrough and Guadalupe Center. What I thought was a curse has turned into a blessing! Please help Kerry Magana and her mother. They are legal residents of the US and they need some representation. Thank you Mr. Cleaver.
Thank you,
Michael Quijas
816.651.9471
michael@inadtv.com
www.inadtv.com
Don't let the sickness steal your smile...
I truly enjoy life and love laughing. Laughing was what got us through those first days. Even though Kaylee got severely sick we laughed, smiled, and cried occasionally. But our internal medicine was laughter. We never let the sickness steal our smile. Sure it's gotten tough at times, but we found humor somewhere. So keep your smile if sickness knocks at your door because it might be that smile that eases someones pain!
Thursday, June 26, 2008

Wednesday, June 25, 2008
Saturday, June 21, 2008
Thank You...
I thank you God for allowing me time with such a beautiful girl whom I'm lucky enough to call my daughter. I thank you for letting me see. If it hadn't have been for that gift then I may never have gotten to see the light, the love, and the lessons from this.
Thank you!
Tuesday, June 17, 2008
Sleepovers and sickless days...
Kaylee progressively got worse. During the first week Kaylee had flu symptoms. She was sick. Tonight Kaylee went to the Plaza for dinner. Last night she spent the night with Bailee Woods. Two nights ago she stayed with Allysa. Wednesday she stayed with my sister Kelly. Kaylee looks and feels so good. I am so proud of her. She is self conscious about certain things but loves her life and her situation at the moment.
Kaylee said she was so comfortable at Bailee's home. I told her how nice it was for me to hear that. The Woods picked Kaylee up last night around 6:30. They took her to their house. I had about an hour with the family. I love them. We have a friendship based off similar experiences. No hidden agenda. No false promises. Our kids are the glue that bonded us. I can't tell you how special the friendship with the Woods family is, but let me suggest a thing to you. If you ever get something as devastating as a cancer diagnosis, keep your eyes open because God might be as kind to you as he was to us when he teamed us up with the Woods family.
I'm going to bed. I have a house full of kids tonight and the sound of laughter is filling our home. I feel like I'm going to sleep exceptionally well. Have a good night and a better tomorrow!
Saturday, June 14, 2008
Maybe...

Thursday, June 12, 2008
St. Louis for the day...
Kaylee and I went to St. Louis for the day yesterday. We drove up there and stayed at a hotel in the downtown area. I suggested the trip on Tuesday and Kaylee quickly agreed. It was only us two that made the trip. We arrived back home today around 3:00 PM. Our entertainment was limited because Kaylee has a hurt leg. Her ankle is swollen and she can barely walk today. I think I am taking her to CMH tomorrow to have it X-rayed. We have been told that steroids and chemo can make the bones brittle.Wednesday, June 4, 2008
Wednesday, May 28, 2008
Sleepless Nights...
It was at that moment that I looked at her differently. She wasn't my kid but a person. A person scared for her health. Wow! Can you imagine the fright you or I would have concerning our health? I get caught up that this person is my kid and we are going through this together but it really is just Kaylee. I don't have to get the needles, bone marrow, or spinal taps. It is my baby but ultimately I go to sleep but does she on days like those? Apparently not. My baby but it's her sleepless nights! I love you Kaylee Marie and I'm so glad the school year is over. You are a Junior as of today, and I know this coming school year will be an awesome time in your life.
Tuesday, May 27, 2008
Mallory Holtman is awesome...

Monday, May 12, 2008
InAd TV Goes Public
CONTACT: MICHAEL QUIJAS
MICHAEL@INADTV.COM
http://www.inadtv.com/
(877) 4 INAD TV
May 12, 2008 – The InAd TV Network will start construction on the public restrooms in the Power and Light District this week. This installation will mark the first of many public installs slated for construction thru 2009. The decision to move on public facilities was made by President Michael Quijas. “Our core business has been with restaurants and nightclubs, but we’ve decided to include and grasp the offers we receive weekly from office parks, entertainment zones, and municipalities from across the nation. Our product works for anyone who wants to inform or broadcast a message.” says Quijas. “Times are changing so quickly with technology that people are looking for new and innovative ways to keep up. Our systems allow management or property owners to greet each of their customers or tenants with a personalized message each and everyday.”
InAd TV Network is a Kansas City-based digital network channel that can be easily recognized by the signature TV’s that are placed above urinals and in the vanity mirrors of KC’s finest establishments. This unique channel gives advertisers, owners, or management an opportunity to target the successful crowds that frequent these locations. InAd TV is so effective because of the full digital commercial capability combined with sound. For more information on how to get your message across or your business noticed please contact Michael Quijas or Ken Campbell at 877.446.2388 or visit http://www.inadtv.com/.
Sunday, May 11, 2008
To you on Mother's Day...
Saturday, May 10, 2008
InAd TV Ropes PBR Big Sky Cowboy Bar
CONTACT: MICHAEL QUIJAS
MICHAEL@INADTV.COM
http://www.inadtv.com/
(877)4 INAD TV
April 28, 2008 - InAd TV is pleased to announce their newest TV network partner - PBR Big Sky Cowboy Bar! This new addition to the Power and Light District is a perfect fit for a city known for its BBQ, steaks, and American Royal Rodeo. Big Sky held its Grand Opening on April 10, 2008 and their success continues to ensure Kansas City of a premiere Country and Western venue.
InAd TV Network is a Kansas City-based digital network channel that can be easily recognized by the signature TV’s that are placed above urinals and in the restroom mirrors of KC’s finest restaurants and nightclubs. This unique channel gives advertisers an opportunity to capitalize off the successful crowds that frequent their locations by prominently displaying full video commercials with sound to a captive audience.
So cowboy up and head down to the hottest place in town and check out InAd TV.
InAd TV goes with a homestyle recipe
CONTACT: MICHAEL QUIJAS
MICHAEL@INADTV.COM
http://www.inadtv.com/
(877) 4 INAD TV
April 7, 2008 – The InAd TV Network will celebrate the Grand Opening of the new Stroud’s Restaurant & Bar with much enthusiasm today like so many others, but the company’s excitement goes beyond the signature cinnamon rolls and home style fried chicken dinners. InAd TV is pleased to announce their newest location in the much acclaimed historic Stroud’s Restaurant.
InAd TV Network is a Kansas City-based digital network channel that can be easily recognized by the signature TV’s that are placed above urinals and in the restroom mirrors of KC’s finest restaurants and nightclubs. This unique channel gives advertisers an opportunity to capitalize off the successful crowds that frequent their locations by prominently displaying full video commercials with sound to a captive audience.
Stroud’s South will open today at 11:00 a.m. at 4200 Shawnee Mission Parkway in Fairway, KS. For more information on how to get your business noticed please contact Michael Quijas or Ken Campbell at 877.446.2388 or visit www.inadtv.com
The InAd TV Network partners with Mcfadden’s
CONTACT: MICHAEL QUIJAS
MICHAEL@INADTV.COM
http://www.inadtv.com/
(877) 4 INAD TV
JANUARY 31, 2008 - Mcfadden’s Sports Saloon located at 1330 Grand Blvd. in the Power & Light district is the latest addition to the rapidly growing and ever popular InAd TV Channel Network.
InAd TV is a Kansas City-based digital network channel that can be easily recognized by the signature TV’s that are placed above urinals and in the restroom mirrors of KC’s finest restaurants and nightclubs.
The on-air programming includes in-house promotions like specials, upcoming events, and featured menu items.
In addition to the in-house promotional tool, InAd TV gives advertisers an opportunity to capitalize off the successful crowds that frequent their locations by prominently displaying full video commercials with sound to a captive audience.
For more information on how to get your business noticed please contact Michael Quijas or Ken Campbell at 877.446.2388 or at www.inadtv.com
There'll be sad songs to make you cry...
I want everyone reading this to know that it is ok to work your way through heartbreak. I was comparing myself to others and thought that my grieving period was lasting longer than those around me. I felt like I was violating time tables. My pain was great and I had to work out of it in my own way. Everyone is different and there's no way of telling how it is going to affect each individual. Was I unusual because I was consumed with the pain and sickness my child was fighting? No. Kaylee is my child, my baby girl and I was devastated that she was diagnosed with cancer.
Sometimes I listen to music and think about our life. The most recent was today when David Cook was singing Mariah Carey's "You'll always be my baby" It made me think of California and the past. I thought back to Kaylee as a little girl. It was a period and time I took for granted. I never connected songs or artists to my child. Well I thought I didn't but I did and I have. I used to just associate Boston, Elton John, and similar groups to my younger years. High school was the association I normally made to music. Yesterday it was Kay and the 90's. I thought again how - if anything ever happened to my loved ones - would it be possible to listen to that music again. I'm not sure. I'm positive that I'm not the first person to question this. I'm sure it happens frequently to people who've had a parent pass away. Those songs.
I don't give it much thought about the "what ifs" but sometimes they do arrive and make me think. Today I must enjoy the music because there's no reason not to. Although if you see me driving and there's a tear in my eye, please be aware that I might not notice you. Elton John, Mariah Carey, or Sarah Mclachlan may have my attention and they may have me somewhere else in time. As Billy Ocean said "There'll be sad songs to make you cry..."
Friday, May 9, 2008
Stability in the mood...
I can watch a program about kids in Africa and get emotional. I will easily shed a tear and get choked up. To have your own kid, one that is suffering look at you for relief is tough. I can only sit with her and rub her back or leg to give comfort. I feel so guilty that I can't grab her and get emotional but I can't because we have to be strong to get through this. Even though I can't fix this, I have to look strong for stability. Stability is an important thing during times like these!
Thursday, May 8, 2008
A great story...
PORTLAND, Ore. (AP) - With two runners on base and a strike against her, Sara Tucholsky of Western Oregon University uncorked her best swing and did something she had never done, in high school or college. Her first home run cleared the center-field fence.
But it appeared to be the shortest of dreams come true when she missed first base, started back to tag it and collapsed with a knee injury.
She crawled back to first but could do no more. The first-base coach said she would be called out if her teammates tried to help her. Or, the umpire said, a pinch runner could be called in, and the homer would count as a single.
Then, members of the Central Washington University softball team stunned spectators by carrying Tucholsky around the bases Saturday so the three-run homer would count - an act that contributed to their own elimination from the playoffs.
Central Washington first baseman Mallory Holtman, the career home run leader in the Great Northwest Athletic Conference, asked the umpire if she and her teammates could help Tucholsky.
The umpire said there was no rule against it.
So Holtman and shortstop Liz Wallace put their arms under Tucholsky's legs, and she put her arms over their shoulders. The three headed around the base paths, stopping to let Tucholsky touch each base with her good leg.
"The only thing I remember is that Mallory asked me which leg was the one that hurt," Tucholsky said. "I told her it was my right leg and she said, 'OK, we're going to drop you down gently and you need to touch it with your left leg,' and I said 'OK, thank you very much."'
"She said, 'You deserve it, you hit it over the fence,' and we all kind of just laughed."
"We started laughing when we touched second base," Holtman said. "I said, 'I wonder what this must look like to other people."'
"We didn't know that she was a senior or that this was her first home run," Wallace said Wednesday. "That makes the story more touching than it was. We just wanted to help her."
Holtman said she and Wallace weren't thinking about the playoff spot, and didn't consider the gesture something others wouldn't do.
As for Tucholsky, the 5-foot-2 right fielder was focused on her pain.
"I really didn't say too much. I was trying to breathe," she told The Associated Press in a telephone interview Wednesday.
"I didn't realize what was going on until I had time to sit down and let the pain relax a little bit," she said. "Then I realized the extent of what I actually did."
"I hope I would do the same for her in the same situation," Tucholsky added.
As the trio reached home plate, Tucholsky said, the entire Western Oregon team was in tears.
Central Washington coach Gary Frederick, a 14-year coaching veteran, called the act of sportsmanship "unbelievable."
For Western Oregon coach Pam Knox, the gesture resolved the dilemma Tucholsky's injury presented.
"She was going to kill me if we sub and take (the home run) away. But at the same time I was concerned for her. I didn't know what to do," Knox said.
Tucholsky's injury is a possible torn ligament that will sideline her for the rest of the season, and she plans to graduate in the spring with a degree in business. Her home run sent Western Oregon to a 4-2 victory, ending Central Washington's chances of winning the conference and advancing to the playoffs.
"In the end, it is not about winning and losing so much," Holtman said. "It was about this girl. She hit it over the fence and was in pain, and she deserved a home run."
2 Hold Outs and a Smile...
I gave a presentation at 11:00 am at the Bernstein-Rein Advertising office this morning. There were 9 employees from the media department waiting for me in the conference room. I took the seat at the head of the table and did my thing. I think that the speeches I've given over the last year have really helped in my cool and calm department. I use to get really nervous but I've figured out that you need to stay cool and calm, and never act as if you're out of breathe.
I always pretend like I'm the boss. The old saying was "pretend everyone in the room is naked" but I just pretend that I'm the big guy who calls the shots. Crazy? Well it works for me. I envision everyone wanting to be me! Try it, it works. When I talk about my product or service I imagine that I am sharing financials with stockholders. When someone from the crowd makes eye contact I pretend I'm going to offer this person the employee of the month award. It works.
When I arrived this morning for the meeting I was feeling great. It wasn't because I was going into a meeting with 9 different personalities, or because I was going to try to sell myself for an hour. Misery! It was because I had a moment right before I walked in the door, I thought how lucky I was I to have so many people waiting to talk to me. Silly but who would have thought that you could create a product and demand attention. I was going into a room full of people wanting to hear about this thing they call InAd TV! My dream, my creation, my morning.
Out of the 9 people in the room, I only meshed with 7. The two hold outs were not my personality type. The others were receptive. The last two kept their distance and their smile to themselves. Well I did my thing and ended my presentation and threw in some personal advice. I told everyone to smile during their day and enjoy life. They knew I had a child fighting cancer because someone asked me to tell them a little about myself. So I did. I think that these mothers, fathers, and ad people related when I suggested that they smile. If I can smile having a sick kid, then anyone can. They smiled and said thank you. I finished up the presentation with a funny story on how Bernstein-Rein Advertising and I got introduced. The story was so funny that everyone in the room including my 2 hold outs started laughing. It was only a matter of time before I had 9 out of 9 ad exec's laughing and smiling.
Well I'm out of words, and out of time, but I'm not out of breathe!
Sunday, May 4, 2008
Suspenders and ugly ties...

I gave a speech Friday to Central Missouri State University students. It was part of a Tech Conference and I got the invite to talk about being an entrepreneur. It was an honor. I was nervous but talking in public has gotten easier for me. I truly think that I could give a speech to a stadium if I was asked. I use to black out and forget what I said. It was like I couldn't hear my words. Today I'm conscious when I speak, if I was only 40 lbs. lighter then I'd be a force to deal with. Look out Matt Lauer.
When I'm around other people like me, entrepreneurs, I size myself up. I say that not to gain sympathy but I'm being real. It's like being an athlete and scouting the room for talent. Whose your competitor and how do they conduct themselves? I'm not saying I want to confirm to a certain mold but I'm different. We all want to have people invest in us as a business but more importantly as a person. I know guys who can get money strictly off their name and reputation. I have to fight for a dime because I've never ran in the same circles. The guys who were at CMSU Tech Conference with me were more established. I say that because several had sold companies in the past for millions and here I am. I have my own sizzle but I didn't have their style. That's not bad by no means. I just didn't seem like them.
I always reflect back to San Diego, CA. These guys that I knew who owned businesses there wore flip flops and shorts. Sure I might not be talking guys running financial accounts and investments but guys who had business that allowed them freedom. Surf shops, retail clothing, and a variety of other things that had them making their own rules. I sometimes leave these functions in my crappy Hyundai or Jeep while the guy next to me departs in his Mercedes and I always sense that maybe just maybe I should sell out to their style because I might arrive quicker. But I like being real. Is my being real impeding me and my advancement. Do I confirm to suspenders and ugly ties? Who knows and I guess we'll find out where I end up soon!
Thursday, May 1, 2008
Willie Wilson...

Willie was a Kansas City Royal's baseball player for fifteen plus years. He was and is so wide known to us older people because he was baseball and the Royals. Our team back in the 70's & 80's was awesome. The majority of players stayed for years and we were tough. I can remember having a team that was always in contention for a championship. Willie said it was because of the owner at the time. Mr. Kauffman.
I listened to his stories and came away from the conversation with the understanding that he was part of more than a team but was part of a family. He was a part of a baseball family headed by the owner. Although baseball is a corporation and ran that way, it also has leaders. Leaders can lead with a strict hand or leaders can be part of the growth & equation. Call me crazy but I relate everything to what I'm going through. I lead my family and I'm leading a business. Both can be done with strict guidelines where no one wants to stay long or you can do it with understanding and compassion. Some say I wear my emotions on my sleeve but that is me. I know from experience that things can change so quickly and unexpectedly that I must be ready to adapt. Being a leader is not writing checks or just talking the talk but living it with your players. I might not have hit any home runs or won any championships but I am playing the game. It is called life and I so want to succeed!
Is there a doctor in the house...
I cut everything short that I had planned and made my way to the hospital. I was approached by the staff and they asked if I would travel to the floor, the admission floor, and talk with the dad. I agreed. I can not explain the common thread or fraternity that you have when you go through this. It is beyond words. The feelings or emotions are text book. You encounter things that are so out of the norm. You feel alone. You want comfort then you get sick of the phone calls. You get messages of support that you want then you don't. You question statistics and then you ignore them. You ask why God did this to you and not your neighbor. You reason in your head that you could sacrifice your Mother, your wife, or any of your relatives if only God would spare your child. The fog is so thick that life as you know it will never be the same.
I walked to the floor and the father was walking out. He had head phones and running clothes on. The doctor introduced us and left. We talked outside in the lobby. He told me he was tired. I explained that I was not there to promote religion, or minimize. I told him that he will take whatever I say as words and no matter what I say he will say to himself that "this guy doesn't realize the love I have for my kid" I agree, I love my child more than you! It is similar to a break up. You will always have people tell you to stick in there because they did it and experienced it. Well the fact is I told my self that no one knows my pain because Kaylee is one of a kind. I love and feel more than anyone!
The truth is that all these feelings are going to be there in the beginning. Darkness is everywhere and one day turns into the next. I literally thought it was Wednesday when it was Friday. I sometimes felt relief because there was no where I had to be but next to my child. I got sick at times because I knew there was another member of my family, Christian, being thrown out of his routine. It is so overwhelming.
I told him that my blog was my savior and my friend. It really was. I had to find something to occupy me. It was this trust worthy blog! It was funny I said it because it was something that he said he was doing as well. I look back and thank how lucky I was to find my coping mechanism, and how fast I did it. Today I can go back through and read about days I felt like dying and can smile for the fact that I documented my story.
I was honored that the doctors, picked me out of the hundreds that attend the clinic to make this vulnerable man feel better. Hell, maybe I didn't do anything or say anything that was worth listening to. But it did something for me and I guess that's all that matters,
Sunday, April 27, 2008
Barry for a Break...

Wednesday, April 23, 2008
Cheers...

Tuesday, April 22, 2008
A great day and a better tomorrow!

Wednesday, April 16, 2008
Leaves and Laps
All that stuff I wasted my time worrying about was insignificant. We had a great time. It wasn't stressful and we all had good food and a great time. I must say that I had one of the best birthdays yesterday. I had so many phone calls, text messages, and emails. I was surprised so many people came to my little dinner and so many people remembered my big day. It was nice.
My yard looks horrible compared to the neighbors. I let the yard work go last year. The summer was chaotic due to Kay's illness. I must confess that I have never been good at yard work. But last summer and fall was terrible. I didn't care about the yard or anything else for that matter. It was all about Kaylee.
Kaylee is doing great. We had an appointment this morning at CMH. Her counts are looking good and Kaylee looks wonderful. We are going to start swimming together. I need to lose weight and Kay needs to gain strength. I'll keep you posted. Have a great day and a wonderful week!
Tuesday, April 15, 2008
The Moans...
Today I respect life and I don't take it for granted. I feel strong. I feel like there is purpose for me and purpose for all that has taken place. Everything has had a way of working out for me. I'm not completely out of the woods but I have my sights set on the target. We are going to get healthy and we are going to succeed at what ever we do!
I think about the moans. The pain and the sound of pain has been traumatic. Last night I found out just how much. We had a baseball game and our batter was up to bat and the fastball hit him directly in the face. I did not see the pitch or the painful hit but I saw this child on the floor moaning after the fact. I thought it was Christian. My gut dropped. It wasn't Bubba but this little 12-yr. old was moaning from the pain. He was so hurt. I started crying. I can't tell you how I must of became immune to the sound of pain for survival in my baby girl. Last night it wasn't my child but it spilled out of me because of the fact it wasn't my kid. I have been so geared to deal with whatever to survive. I have tucked the pain away and last night seeing a child on the ground moaning has my heart hurting today. Our batter, Connor, is fine and there was no serious damage but I pray for a speedy recovery and I pray that no kid should ever have to feel pain ever again.
Thursday, April 3, 2008
Quote of the Day....
- Rita Mae Brown
Wednesday, April 2, 2008
An Eye On the Prize...
I called the bakery and had them make a chocolate cake with the words "Kaylee's kicking some cancer butt!" We are having dinner at Kaylee's favorite restaurant in Lee's Summit. Beauchamp's on the Rail. It is a BBQ and steak house. We secretly delivered the cake so we can surprise Kaylee tonight after dinner. We are blessed today. If you had a bad day today- let it go and celebrate with us. We are one step closer to getting our little girl's health back. :)
Mary Carey...
By the grace of God we found a woman who had a duplex that would rent to us. Tammie worked at Marco Polo's in Waldo and I at Dos Hombres in Brookside. The location of the house was perfect. I walked to work and Tammie had girlfriends that worked with her so they let her carpool. We did this for awhile before I got a call from a woman.
The woman on the phone was Mary Carey. She was the mother of Craig Estopare, a friend I had known since I was 8 years-old. She invited me over to her house because she said she had a present for me. I had not seen Mary in years and she had a present for me? Weird. But I was there when she told me to come. I needed any presents at that time because I was in a cycle of confusion and scare. I was having a kid and I was not ready.
I arrived at Mary's house and we talked. She had heard through one of her boys that I was walking to work and an expecting father. Yes I was. She tossed me some keys. My confusion cycle was hit again. I asked her "what are these?" She said it is the keys to the Ford Tempo sitting outside. She gave me a car. The heat worked, the a/c worked and it had 4 wheels! I might have cried, I don't remember. She looked at me and told me she needed help at one time and this was her way of paying it back.
It's funny how things can work out or not. I believe that sometimes you strap in the seat and let life take you on a ride. Things always seem to work out. Our brown Ford Tempo was the vehicle that we drove Kaylee home from the hospital in. We needed that car and it arrived from an angel named Mary Carey. So investigate the situation sometimes. I know several people that wouldn't give you a dime if you where thirsty because they have a certain mentality that you should do it alone. I have a different mind set. I believe that everyone needs a drink every now and again regardless of where it comes from. Drink up!
Can you help?...
My offer is to put your commercial - that I will produce for free - in front of 250k people per/mo. Our commercials alone would be more than a reliable car, plus combine that with the service/exposure I am offering. We have new P & L District, Legends, Johnson County,and Lee's Summmit markets. I think you'll find that this good deed and city wide coverage will help you professionally and personally.So if you have an extra set of wheels just sitting there, I promise I can get you noticed in a captive way that turns heads!
I spent time with this young 25 year-old yesterday. We had lunch and talked about his dilema. He is from Southern Missouri, a bright young man, and a soon to be father. His car completely died several weeks ago making it impossible to get to work. Eventually he lost his descent paying job because he had no ride to work. The lack of credit and down payment has punched him in the eye. It reminds me when we had Kaylee and no car. I walked to work in Brookside. So I completely agree when people say that everyone will work past any situation that presents itself but this is a hard one. This man wants to work but there is no transit by the home. He wants to work and his track record proves it.
I've decided to help but I don't have an extra $1500 for a car. We have our own troubles here at Fort Quijas. But I am willing to give the only thing I have and that is prime advertising exposure in Kansas City. Please think about it. I know how it gets when life gets you down if certain basic needs aren't met. Having no family that can lend a hand is tough. Having to walk to a job that pays half of what you're used to because you've exhausted all rides to a jobsite that demands you be there at 6:30 am. Bringing less money in the door when your bills stay the same or increase is frustrating. I know. This young man told me he didn't want any hand out but felt he was falling into a cycle. I'm familiar with that cycle. You do the right thing every morning but one small glitch derails everything. Everyone needs some help every once in a while!
Tuesday, April 1, 2008
Chapter 3: Do You Get It?

Friday, March 28, 2008
Chapter 3: Hope
Chapter 2: Small Investments
I know that I'm here, with this family, that was created out of love for a reason. I drive through my old neighborhood and think how lucky I am to have made it out. There are many people I grew up with that never made it out of that neighborhood. I'm not condemning them but a majority of those that stayed ended up in prison, dead, or repeating the cycle of dysfunction that they were subject to. That wasn't for me.
I was lucky. As a child I always had family or people around that invested in me. My Aunt Connie DeLaGarza was one of the first. Besides being my Aunt she was also my Godmother. This woman taught me so much in my early years. When my mom worked double shifts on the weekend my Aunt took care of me. She wouldn't allow gossiping or bad mouthing in her home. If my mom came after work on Sunday to get me, Aunt Connie would make sure that I was showered, packed, and ready for bed. This was done because she knew that my mom would be tired after working all weekend. I remember watching the Sunday Night Disney Special waiting for my mother to arrive. Aunt Connie would have Q-Tips in my ears cleaning them out. I often prayed that my mom would arrive sooner then later because Aunt Connie didn't have the softest touch. But her touch had love.
I drifted away from my Aunt as I grew older. But that investment came again. It was from the next door neighbors. Tony Carr was six years older. His mother was Mary Stanhope and his father was Stan Stanhope. Stan was Tony's step dad but you'd never know. He raised Tony from a child. We happened to move in the neighborhood and our neighbors were the best. Tony was like a big brother. Mary & Stan were good examples on all levels. All this right next door. I say that because we had a variety of people in that Kansas City, KS neighborhood that we could have been positioned with. Alcoholics, drug users, pushers, and criminals. We got Tony and his family.
Tony's family worked and they had a good life. They had a camper trailer in the back yard that we often slept in for fun. Tony had motorcycles that he raced. Suzuki RM-125's. I would go to the races on the weekend and watch Tony. To describe one incident or occasion to define their investment would be impossible, it was a constant and I thank them for the positive environment they created around me and for me.
The last memorable investment or influence was Dr. Frank Jones & Beverly Jones. They were the parents of my best friend Nick Jones. Their address was 5600 High Drive in Mission Hills, KS. I became friends with Nick in 1976. Our introduction was made at St. Agnes Catholic School in Roeland Park, KS. We became best friends instantly and have remained best friends ever since.
Nick's family exposed me to a different way of life. They had materialistic things and it made me want. They lived a rich lifestyle because Frank was a Doctor but more importantly he was a money making machine. He had property, restaurants, businesses, and respect. He was the man. I got to vacation with them at their house at the Lake of the Ozarks and Siesta Keys Florida. I also traveled other places with the family. Those experiences helped create something in me that wanted. I wanted to be successful like Doc!
So I encourage you to invest. Invest in a nephew, neighbor, or someone that could use that influence or attention. It is easy to do just what's expected but sometimes when you reach out a little further it can be just enough to steer someone in the right direction.
Thursday, March 27, 2008
Chapter 1: The Definition of a Man
I must confess that I am a dreamer. I have this thing inside me that wants to carve out this little existence for me and my family. I want to succeed on my own terms. It's my dreams that I work for every day. But at what cost? How simple would it be to get on someone else's payroll? Put the hustle away and get up every morning and have my day planned. Work for a wage. It sounds simple but it's not me.
Tonight is the start of something new for me. I am going to document me. My day, my life, and my future. The Kaylee writings are going to have to stop for now. She needs her room and she needs to get back at being a teenager. Private and personal. She wants to move forward and I don't blame her. I'm not done working my way through this so I am going to continue. I'm going to share my story.
I ask what defines you for a reason. It was always set in my mind that I would define myself by the things I was going to do. Build great things and receive those cheers. There was no doubt that I would make the next light bulb, engine, or computer. Seriously. I believed that I could do anything. I still do but it has occurred to me that there are several things that have to align for greatness. Harmony at home, hard work, and luck just to name a few.
My definitions have changed. Accomplishments have fallen down the list. In all reality, for me to succeed financially at my own thing demands a certain amount of wow. I'm at the mercy if you want my widget. Without the demand of your product is like sailing without wind. You don't! Family is more important than ever and happiness is a must. Accomplishments have moved to the back seat. But being healthy at work or whatever you do is a must. I have to feed the family and if that was to stop then we would have all sorts of problems.
Harmony is a component of a happy man and to me that is what I would define a man by. Happiness. You have to be happy. It might sound crazy but to me a happy man is a satisfied man. To be satisfied is what I would define a man on. Satisfaction breeds health. To be truly satisfied in all aspects of your life would be a dream. So if I get to dream for a moment then my dream would be a life of complete satisfaction. Impossible maybe, potentially boring-probably, but it sounds simple and good to me tonight. Happiness!
Wednesday, March 26, 2008
Sun block, long underwear, and one more week...

Fingers crossed...
I will be quick and to the point. Please include a prayer to God, Jesus, Jehovah, or any other higher power for our daughter. We are so close to seeing light at the end of the tunnel that we can taste it. Kaylee acts like it is no big deal but it is. We are like kids on Christmas Eve. Keep your fingers crossed.
Friday, March 21, 2008
The story behind 10 Kids Insured...
I officially started my non-profit "10 Kids Insured" on January 16,2008 in the state of Missouri. I have a 501 (c) 3 application pending. I'm not sure about the wording on all that but the attorney does. I am providing health care insurance to children who are lacking coverage. I am providing children an opportunity at health. (I like that phrase, I think I'll use that somewhere in the literature.) I announced the idea on December 21, 2007 as a gift to families to mark the six month anniversary of Kaylee and her battle against cancer. For those that don't know about Kaylee, she is my beautiful fifteen year-old daughter who was diagnosed with leukemia (A.L.L.) on June 21, 2007.
I had the idea for sometime but I wasn't sure how I would raise the money for such an endeavor. I decided to use my business as a tool to generate money for the cause. I own a unique company in Kansas City called InAd TV. InAd TV is a digital signage company in Kansas City that specializes in restroom installations. We place TV's above urinals and in vanity mirrors. My network consists of 100 LCD screens covering the Metro area. My business is to install the system then have sales teams sell the advertising on the screens. We always have excess commercial time and I thought that I could turn that unsold air time into insurance premium money for the kids. Sounds good.
The problem with that is I will have to wait to get it all lined out and then reconsider, toss it around, and find reasons not to do it. I decided to do it differently. I would find the money for the kids. I just needed the kids. Low and behold I received a phone call. There is a group of girls in the city that want to play a sport but they can't because they don't have health insurance. I guess there's a rule requiring coverage. The insurance broker got wind of it and called me. I thought about it for a second and thought, "I can handle that!"
Providing insurance to kids that want to play sports is a perfect fit for us. My daughter, a cheerleader, has been sidelined and bedridden for nine months. She has not been able to participate in any activities this year. She has not stepped into one classroom. Hasn't had a chance to sit in her favorite chair at lunch. These fifteen girls can make it up for Kaylee. They can play for Kay. I am going to stay tight lipped about the organization I'm helping until it is finalized.
I told family and friends about my mission and the connection with Kaylee and everyone threw in money. I raised money this first round from people who want to help me help the kids. I'm amazed by the generosity of people. I get to launch my first kids in honor of Kaylee, Fifteen girls who want to play on a team. Maybe one of these kids will meet her best friend, Maybe it will keep a child busy and she won't get into trouble because she'll be at practice. Maybe one of these girls will find that she has so much talent and maybe just maybe this kid will get a scholarship because her talent is noticed.
The insurance issue is a touchy one for me. I want kids to be able to go to the doctor when they are sick. Waiting in the emergency room at Truman Medical Center in Kansas City, MO is torturous. It takes hours to get in and the treatment is brisk due to the volume of patients. I'm sure being able to see a doctor on your own appointment terms will be a luxury to any of these kids. The hospital is a life saver to many, but an all day event to say the least.
As much support as I've had, I've also had to deal with negativity and mixed emotions. I look at this as an opportunity to help kids live healthy lives, provide peace of mind to parents, and a way for me to give it back to the community. Some people have told me to wait and search for the right kids. What? If your child has no insurance and I can help, and all other options have been exhausted then you're my candidate. I'm convinced that if you don't chase your dream or implement your plan you'll wake up one day with regret. I don't want any regret in my life or my family's life.
Thursday, March 20, 2008
A Jewel...
Kaylee was denied the maintenance phase for at least one more week because she didn't make counts. We had anticipated balloons and cake for the occasion but we'll have to hold out for just a little longer. We are going to throw a party for this little girl soon to celebrate. She missed her birthday and has missed out on the entire school year so we feel obligated to have a celebration for her life and this experience soon. Should it be contained to just our little family or should I make it huge and a production? Any suggestions? I might let her answer that question, huh? I want a big party to make up for her lost time, but Kaylee is so simple and sweet that a cake and ice cream would be just fine.Tuesday, March 18, 2008
The Next Move...

I mentioned doing right and funding in the same sentence. I feel guilty mentioning the two together. But if things go right at work it usually means things go better at home. I leave work at work but it has a way of following me because I started it from home. I feel blessed that I can dictate my schedule and I can be around as often as I want but it is a burden running a company when you have a sick family member. I have to make decisions daily that affect those around me and sometimes I'm not sure if I'm in the best state of mind to make those decisions. I need to be a leader but sometimes I wish I could be a follower. I think sometimes I would much rather focus on my family and let the other guys figure out the next move. It is great to dream.
Monday, March 17, 2008
Saturday, March 15, 2008
Our Feature Presentation...

I'm so excited to have her able to go out and not worry about the immune system, the sickness from the high doses of chemo, and the weekly admissions. I have to admit that I'm scared to pull back from the treatments. It is common among parents I'm told to worry about things like that. Tammie tells me not to worry because Kay has responded so well to the treatments. She is a fighter and we'll be just fine.
Tonight I'm so bored. I have places to go but I don't feel like drinking. It's cold and boring. I feel like I'm stuck. Socially I'm not 100%! I should be out hustling my business but I'm not all the way back from the traumatizing experience we've endured the last 9 months. I find my self a little less confident at times. I get nervous about my business. I fear sickness and I fear catastrophe. I size myself up some times and can't figure out why I'm not conquering the world when it seems I've been to the edge and I have nothing to lose. I should excel because a simple no is the least of my worries.
I picture a movie and I visualize a father who can get anything done because he has too. He has nothing to lose. He has a child at home fighting sickness. This fictional character has confidence and can do anything it takes to make money. Sales, cold calls, partnerships. Anything. When you go through something like fighting illness with your child, it's like you couldn't face anything worse.
Well I do the best I can. I think I could do better but I have issues. I'm lucky to have a great support system. But when this happens you initially think that your old fears are all gone because you have been awakened. But on the other hand you get consumed that everything has to go perfect in your business because that is what keeps the family floating. So work becomes extremely important and filled with pressure because you want to make sure everyone is as comfortable as possible. Plus Tammie stopped working and that income seized. What's a person to do. Where is this fictional man I created in my head?
The Combination...
We were so excited for this morning. It was our first baseball tourney for the season but it was called off due to the weather. I was ready to get the season going. Eighty degrees on Thursday and snow on Saturday. Who would have thought?I never know what to expect. I've come to terms that so many things are out of my control. Snow? Cancer? Blood? It is what it is, you have to continue and plan for the unexpected. At least we have each other to count on for support. Having someone in your corner is powerful. I hate to think that there are people out there doing life alone. Family, friends, and community are so important.
I received a hair cut yesterday from a friend who has been cutting my hair for years. As a matter of fact he gave Christian his first hair cut. I've been friends with him for many years. He disappeared last September. Gone. Well it turns out that he was on parole for a Federal crime he committed years ago and had a relapse and ended back up in prison. Wow! I couldn't believe it. We talked about free time. He said free time to him usually equated to trouble. If he didn't keep busy he had a tendency to spend time with people that usually would drink and do drugs.
He would go out and drink at bars because him and his girlfriend were having trouble. He would find what he thought were friends at bars & nightclubs. These people would often offer him things that were illegal and he would do it. He didn't blame anyone but himself. He did say that having nothing to occupy him usually meant that trouble would follow. We talked about how scary it would be to live in an area ravaged by drugs and crime. We both agreed that it is easy to follow the lead of others sometimes. Most of the time if you don't watch it you can be trailing the wrong person or people. Sometimes you have to kick and scratch to make a change in your life. It doesn't make sense, to think that you would complicate life even more by introducing bad habits and dark avenue's into your life. Life is hard enough.
I encourage everyone to find passion. It is healthy to have passion and an outlet. An outlet to take your mind off things. I promote doing things that work your mind, body, or both. I find writing easy to do. I love to write. It can be done with paper and a pen. I can sit down and escape for a moment. It is more convenient then finding fossils in rocks. It is more accessible then tracking the Monarch Butterfly. Writing is my release. I find that I have a healthy past time and one that doesn't require much.
Have a good day! I am going to drive to the gym now and try to get into the habit of exercising so I feel better physically. The writing is mental and the weights are physical. Not a bad combo if I can keep it up.
Friday, March 14, 2008
Things You Might Not Know...
Click the play icon:
I will share 5 things you might not know about me:
1.) I was on The Price is Right
2.) I like Spam :)
3.) I feel bad for homeless and over weight people
4.) I would like to make a movie someday
5.) I won a Halloween costume contest dressed as a girl when I was little
Here's some other things you might not know:
I've had the same best friend since 1976.
I won $12,000 off three $1.00 coins in Las Vegas, thirty minutes after getting married.
I delivered pizza part-time for Domino's to make a Christmas for my family in San Diego.
I was embarrassed delivering pizza's to neighbors and friends.
I worked in Cabo San Lucas
I worked in Honolulu
I found 22 $100.00 bills in a napkin
I took a pee as Demi Moore did her hair in the mirror next to me in The Beverly Hills Hotel (there was a divider between us)
I found a dead man hanging in a tree when I was 12 y.o.
My favorite car is the Bentley Continental GTC
My dog's name when I was a kid was Pumpkin
I like giving gifts more then receiving gifts
Joe Theisman gave me an autograph instead of a tip (I tossed it out the window)
I love Jack in the Box tacos
San Diego is the most awesome city to live in besides home
I did not know how email worked just 4 years ago
If I could choose a profession it would be Movie Director
Bigger Things To Get Done...
I talked about the Big 12 Tourney and my tickets that were offered to me. I wrote I was going to decline the tickets because I had bigger things to get done. Well I strarted my day earlier to get things done that needed to get done. I made a decision that I should invest time with Christian today. There would be nothing bigger then that for me today. I was going to spend much needed time with just the two of us. So I headed my way to Christian's school and picked him up. I was at the Power & Light bright and early this morning so I left my car in the the Rock Star parking space that I secured early, got a ride to Lee's Summit, picked up the tickets, picked up Christian and headed down to the Sprint Center. (Oh, I had to run home and change my jeans because I wore those same jeans today that I wrote the Style blog about. The straight leg pants they said I should never wear again. They ripped in the butt! I guess it was time for those to go. One way or another!)
Our day was nice and I appreciate Christian. He is so innocent. He grabbs my hand when we walk across the street. We passed a sausage/hotdog vendor with a hot grill and Christian grabbed my hand even harder. He was scared of the flames. He had me and he had my hand. It was special. I like that he is still a child. He uses me/us as a security blanket. I never want to lose that. I want a good relationship with everyone especially my children. Good night!