Showing posts with label The Leukemia and Lymphoma Society. Show all posts
Showing posts with label The Leukemia and Lymphoma Society. Show all posts

Tuesday, January 13, 2009

American Idol

I cry every time I watch AI! I'm not sure why but I have my suspicions! I think it's because I keep thinking that these kids are children of someone. Sounds strange but when I hear someone with a great voice I feel a sense of - Pride. Crazy but I think how proud I would be if it was my kid. I get emotional hearing a good voice, what can I say.

When I see someone cry I want to cry. When I see someone do good I want to cheer. I love to see people succeed. I sometimes don't get why everyone is not that way. Seriously, I want everyone to do good. To see someone try and change, to see someone become passionate, to see someone find their thing makes me feel good. So I guess that is why I am weak for a good voice. A good voice is usually a sign of practice and passion. I sing in the car and shower but would never attempt to do it in public. So if someone does break out in song it usually signifies that someone has practiced on their pitch and I applaud that! Usually.


Please read my story that came out today in the Lee's Summit Journal. One-80 by Michael Quijas http://www.lsjournal.com/100/story/23639.html

Tuesday, December 23, 2008

One-80


I need your help today. Please go to http://www.myfirst180.com/ and purchase my ebook for $12.00. This money is going to help with 10 Kids Insured, The Leukemia and Lymphoma Society, and all the other charitable work that seems to find me. Please help me announce this exciting news to everyone you know. I feel comfortable saying "you never know when you might need a helping hand too."

Saturday, October 18, 2008

Start with a prayer.

I went to see Kerry Magana today. I brought lunch to her mother and got to spend some time with Kerry. She is very sick and depends on a ventilator to bring oxygen to her lungs. She is fighting and I ask everyone to say a prayer for her. We have a Kansas City Star article coming out this Monday. If you get a chance please pick up a copy and look for the Mary Sanchez column.



It is hard to comprehend how tiring it must be her mother. Sickness can wear you out just because of the sickness but throw in that Claudia has been there at CMH for 2 months straight. Kerry is in Intensive Care so what comfort Claudia had in the Bone Marrow floor disappeared when they moved Kerry. Claudia has to sleep with a mask, gloves, and sterile bib. The sounds and beeps from all the machinery would keep anyone awake but toss in that you have to make sure the oxygen mask stays on Kerry's face. So tough.



Claudia has to be there 24/7 so she hasn't worked. She has to feed herself while she is there. That food costs money and I know it can add up quickly. So sad. I can't believe that no one has offered her some sort of food voucher at the hospital. Another tough element in all of this is that Kerry's 13 yr-old sister is having to survive by herself. This means eating alone if her brother is working. She is 13 yrs-old and needs things like all other kids her age. Her shoes have went bad and I know that there's no money for shoes. This young child is frequently at the hospital with her mother and often wants to eat. Her mom doesn't always have the money to feed both her and her daughter. I couldn't imagine. How much can one person take?



It is so easy to listen to these stories and tune it out. If I had to do this alone I would break. If you only knew how stressful it is to spend weeks or in this case, months in the hospital. Those of us who had partners it was still hard as hell. To fight alone is unimaginable. The heartbreak, the financial burden, the fright!



Someday I hope I can advocate for families like Kerry's. It is my calling. I hope someday that I can make enough money in business to free me up to do these things. If anyone can help this mother in any way please do so. Start with a prayer.

Wednesday, February 27, 2008

Hike for Discovery Fashion Show

I want to thank everyone for helping us during the last several months. I was eating at Beauchamp's on the Rail in Lee's Summit, MO on Monday and Jeff McKinnel the GM called me into the office and showed me a flyer for a benefit in honor of Kaylee. The event is tomorrow at Jerry's Bait Shop, and it is a fashion show that will include a raffle. The proceeds will go to the Leukemia and Lymphoma Society Hike for Discovery program. It will help donate and generate money for the team that is sponsoring Kay. The person that was hustling for the program was Kate Mahurin. I called her unexpectedly tonight. If it was against the rules I apologize but I felt compelled to tell her thank you. Please make a donation to her in Kaylee's name. It is easy and quick http://www.active.com/donate/hfdmida/KMahuri I ask you to donate whatever you can. Please go to Kate's link and take a look. Forward the link to family and friends and remember that this is for anyone fighting blood cancer but it's my daughters team and it means the world to me. I really have never asked for any donations but I am today. I can't tell you how great everyone is at L.L.S. , they help families such as ours in a time of need. If you would kindly donate to this link I would appreciate it, so would Kaylee. If you can make the Fashion Show tomorrow it would be nice. I'm not sure if you'll catch me there at any certain time because we happen to have our cheerleader banquet at the same time. I am going to float between the two but I can't guarantee what time I'll be there. Please get involved in a great cause!

Wednesday, February 20, 2008

Kaylee and Chemo

Kaylee is at the hospital getting chemo today. It is an all day affair. She wore her comfy pajama bottoms and slippers. It is a home away from home, sort of. I would have never guessed that we would be regulars in the HemOc clinic.

I was looking a pictures from my birthday last year and thought how healthy we all looked. This year will be different because it seems a new life has started for us. Post cancer days. We were at Houston's on the Plaza last year and the dinner included my family, my sister's, and my sister Kim and Nick Vega. We did one last photo before we left the table and it was a good one. Everyone was surrounding me and it looked like they were there for me. All the kids had their arms around my shoulders. This picture means so much because it reminds me of one of those pictures you'll look at in the future and go "wow, that was a long time ago." The kids look young and us parents look like - parents. Pictures are great.

If anyone knows their school nurse and would like to inform them about a seminar the Leukemia and Lymphoma Society is putting together that educates them on the signs of cancer, the methods of handling such incidents, and the effects of having kids going through treatment, feel free to pass the number along. The person in charge is Micka and she can be reached at 913.262.1515 and those who attend get educational credits. More importantly it is so comforting to know that there is someone at your school who might be able to look past what most of us would think is just the flu and catch something like leukemia or any other cancer. Please consider passing the info, another set of eyes and any education that might help our children is big in my book!

Wednesday, January 23, 2008

A Great Organization...

We had a doctor appointment today. Kaylee is doing great and they said she should be able to attend school at the end of March. It was nice to hear that. I looked at her today and felt sorry for her. How does a child comprehend, justify, or accept that they are having to handle things that most of us never will. I've never heard her complain or say why me. That doesn't mean she doesn't think it. Hell I've never been through anything like it, but I have had experiences in my life that made me say "why me." I can't imagine what goes through her head.

I made a video promoting the Leukemia and Lymphoma Society's Hike for Discovery program. It is an event that has Kaylee as a Honoree Patient. http://www.youtube.com/watch?v=NJPx_LKWe14 If anyone is interested in finding out more info please call Daniel at 913.262.1515.

My next video is going to be for Team in Training. This event is awesome, I look forward to participating soon. Sandy Duncan is the person to talk to at the LLS if you need info on this awesome program. Both events helps fund research and offers families such as mine a helping hand in their time of crisis.

I encourage everyone to call the Leukemia and Lymphoma Society and ask if you can help them in any way. Their number is 913.262.1515. Tell them Michael Quijas referred you.

Saturday, December 22, 2007

The Finish Line...


This picture is of Zach and Jeff Davidson. Zach is four years old, and was diagnosed with leukemia in November of '06. He is in remission like Kaylee and he frequents the same places as Kay, CMH. His father Jeff participates in the Team in Training event sponsored by the Leukemia and Lymphoma Society. I know Zach's mother, Laura, from a job we both worked at in the 1990's, Dos Hombres in Brookside.
I think this picture speaks volumes, and it needs no caption. A father and son going across a finish line. Hard work, and determination gets you from point A to point B. The same characteristics that will get you through life's events. I am pleased to tell you that Zach is in the maintenance phase of his treatment and feeling great. The finish line, in this race to recovery, is in their sights.
I wish the Davidson family a Happy Holiday and a Happy New Year. Thank you Jeff for being an inspiration. It is people like you that give motivation to others like me. You are making a difference and helping a cause we both are connected to. They say you lead by example and you have certainly done that my friend!

Sunday, December 16, 2007

Company Along the Way...


Our dinner with Bailee was great. They had a full house and the dinner was fabulous. We had an Italian spread and we had great conversation. The guest speaker was an inspiration.

I am so proud of Bailee and her strength. She always has a smile and is always up for a conversation. I look at her and admire her candid talks. When the doctor told her and the family of her diagnosis, her dad said she looked at the doctor and said "what are my odds?" Incredibly brave and wise. I like her. No, I love her.

That sounds strange to write but I can't tell you how important she is to our family. Kaylee and her were diagnosed about the same time. Kaylee has her to talk to. We visit each others room's when we are in the hospital. The girls talk medicine and procedures. They are the one's doing this thing and what better to have someone walk with you who's going through the same thing.

We have a lot in common with her parents. Ed woods attended the same high school as me and Tammie. Shawnee Mission North. Jill, Bailee's mom, is incredible. She is taking care of business with Bailee and she's always by her side. This disease is an inconvenience for us all.

I had a chance to sit and eat dinner with Bailee's Grandma, Grandpa, and Aunt. We talked and it was nice. We are so connected that it sucks. We have little one's that we love fighting an ugly thing called cancer. Well, we will get through this and we will have life long friends. It is a path we didn't choose but we'll walk it. We just happened to find company along the way.

Saturday, December 15, 2007

Splitting Hairs & Pulling Teeth


Before I had a child, before I knew anything about cancer and sickness, I use to vision sickness in my own mind. That vision was always of a pale child, losing their hair. My eyes could make me feel the pain and horror by associating the sickness with the hair loss. Well imagine my thoughts when I was told Kaylee was going to lose her hair. Reality with the news. Reality of the hell that laid ahead for her and for our family.



For a short time I thought Kaylee might not lose her hair. She never stops amazing me, so I thought it might let her slip by. Well, strands of hair starting falling. A few here, several there. A few fingers full. Then a hand full. We were losing hair and it was happening quickly. It was Kay's decision whether or not to cut or keep our hopes alive. We waited.


It was a sad day but obligations took over. We had to make sure Kaylee was comfortable, our obligation. So when the hair would fall we were more concerned with disposing of the hairs then saying "poor Kaylee." Hundreds of hairs and they land on you, in your food, in your mouth, and all over your bed. We were all over it. So the distraction of the hair watered down the sadness of the actual losing of the hair. The mind will find a way to cope, and pass the time.


We did one hair cut, and that last a short while before we headed to Misty's Mirror for a complete shave, a new wig. Misty's Mirror is located at St. Luke's on the Plaza. They help cancer patients with an important thing. Their appearance. They have wigs and other accessories for patients of cancer and discuss that transition with you. They talked about the process with Kaylee and they shared their personal stories and it made it a blessed day. I kid you not that I figured I would break down watching Kaylee go bald but I didn't. The owner shaved Kaylee's head and I didn't lose one tear drop. We were getting things done and moving forward.



Today we have our color back and our hair is growing like a weed. I got to thinking about hair loss today after I wrote a letter to a member of Oprah's staff who is doing something/story about Locks of Love. I wrote and told her about Kaylee and about the courage she had when she appeared on the front page of the newspaper without hair. Subsequent to that she was on a Leukemia and Lymphoma Society mailer. Kaylee has had girls tell her that they admire and adore her self confidence and strength. We all do. I believe Kaylee has inspired other teenage cancer patients to feel the same way about theirselves.


If you would send an email to Ms. Okeefe with Kaylee's name and a link to my blog, I'd appreciate it. I want Kaylee to have the spot light. I think she deserves to be in Chicago on the set of Oprah. She should have 15 minutes or 15 days of fame, but I'm having a hard time getting someone to notice my child. It has been like pulling teeth. I'm obviously biased, and have vested interest in this teenager from Missouri, but please help me do something special for Kaylee Marie Quijas. Our teenager has been battling some tuff stuff and has been home or hospitalized for 6 months. I want her to get an invitation to a show, a place, or a function. The email address is sokeefe@harpo.com and Kaylee's blog site is http://kayleequijas.blogspot.com/ . Someone be creative for me and get them to notice Kaylee and her story, her Locks of Love wig photos from the Leukemia and Lymphoma Society, her front page newspaper photo, or my big melon if that gets it done. I wish all a good day...

Monday, November 19, 2007

Appreciation Beyond Words...


I want to thank you Mary Hayes. My daughter had a wonderful time tonight because of you, and your kindness and generosity will not be forgotten. Although I've never had the honor of meeting you personally, I just want to say thank you so much. Tammie has said so many nice things about you that I look forward to meeting you soon. I admire and appreciate your kindness.

The jewelery event in honor of Kaylee was touching. The Independence Center event was an event that my girls looked forward to for weeks. I'm aware of the time you invested in both projects and we thank you. I forgot to mention that the event was a huge success. Congratulations!


The gift cards for Kaylee were great because she got out and enjoyed the shopping. We can't tell you how important it is for us to see our beautiful daughter out applying her taste while shopping. I've slowed down enough to really appreciate the style and grace of my loved ones. To watch them do simple things are more important then ever. To watch Kay's nose as she sniffs a squirt of perfume. Observing as she takes a bite of her food. To watch Kaylee drink pickle juice and truly enjoy it is amazing!. All these things might not have been too important months ago but it is priceless now.

One last thing, the Vemma Drinks will help with Kaylee's recovery. We just might get her weight and strength back sooner then we thought. I don't want to bore everyone with all my new appreciations, but appreciating is good. So I have to say, Mary Hayes, we appreciate you more then words can say! www.myverve.com/healthy_energy

Sunday, November 4, 2007

Unpredictable Battle...

It is 9:46 PM on Sunday November 4, 2007 - We have been waiting for Kaylee to get released. Her counts aren't at a level to be released. We are waiting until 11:00 PM to check them again. We were certain that we would be home early but this disease is unpredictable.




We received the news that one of our kids on the fourth floor passed away today. This little angel was 10 yrs. old and fought until the end. Her name was the same as Kaylee's. It is so surreal to see these children playing or doing craft time one day and finding out they contracted a simple infection, cold, or virus the next day. You are exposed to sadness, sorrow, and pain weekly. I would have never imagined having talks with parents about losing children. To see a parent during the week and then finding out they lost their battle is sickening.




I worry about Tammie listening to these stories. I keep a distance from everyone on our floor because I can't go there. I am worried about our battle and our recovery. I love everyone on the floor, I have empathy for every person fighting disease, and I pray for everyone. But I am emotional and I can't get close to most. I have to survive and if that means keeping a distance then I'll have too.




Tammie stays most nights so she is part of the group. They cross paths in the parent room or in the halls. Every time I hear a tragic story it pounds home the severity of what we are against. Cancer, blood disease, leukemia. It is such a reality check that you sometimes wonder how in the hell did I get here? I'd do anything not to worry about my child. How I use to take things for granted. Our life was about who was staying where, and who was spending the night. It was a simple time not too long ago.




Yesterday we had a visitor, one of the patients, named Kari. She is fighting the same thing as Kaylee. She is fourteen and came to visit Kaylee. They played UNO and talked. We all talked about leukemia and she said something that was so beautiful. She said "My mother tells me God won't give me more then I can handle."






I can only write and spill my emotions, can you imagine being the one doing the battle?


The Leukemia and Lymphoma Society…

"Sometimes life produces a fog in your life that is blinding. The guiding light for us was The Leukemia and Lymphoma Society who helped us navigate through our darkest days."

This story is about The Leukemia and Lymphoma Society. I think it’s worth sharing because it's about survival. Surviving the moment is important, I think you get geared for a fight when you get a devastating diagnosis such as ours. You fight and fight only to find out that the bills still have to be paid. I understood this, but it was difficult to run a business. I just didn't care about anything that didn't have to deal with Kaylee and our family. I was depressed and sick with sorrow. This went on for awhile until I told myself that I had worked way to hard to lose what I had created. It was an inventory time. I had to take stock of everything.

I figured if I didn't have the drive for my business, maybe The Leukemia and Lymphoma Society would have something I could do that would give me a jump start. I needed to get out of the house and do something. This turn around I was looking for would be healthy for me, my family, and everyone involved with me.

I don’t just worry about me, but I worry about the people and employees who look towards me for direction. I am directly responsible for people, their families, and their bills. If I’m gone or out of it, then the vision needs to come from somewhere. It is my vision and determination, combined with others, that keeps this company alive. Many people consider personal and business issues seperate, but I disagree. I’m here to say that they directly tie into each other. If you have trouble functioning on a personal level, it’ll rollover into the business side of your life.



So many times you hear of an organization that has meaning but not to you. That was the case of the Leukemia and Lymphoma Society (L.L.S.) Last April or May I was reading an article and noticing the pictures of a big event hosted by the Leukemia and Lymphoma Society. I looked at the pages with all these individuals who had come together for a Gala that looked so rich. I say rich meaning clean and prestigious. I told the guys that work with me, that someday we’ll be there rubbing elbows and donating money. I didn't have a clue what L.L.S. did, I just wanted to be there.


It has always been my goal to give back. To be giving and generous is what successful people do. I figured if I could stop worrying about the phone bill one day and could actually make a donation then I’d be successful. I also wanted to be in the same room as those people who are photographed looking so good in those magazines and newspapers. If this starts sounding bad please forgive me because my priorities were mixed up. I never wanted the L.L.S. to have a part of my life, I just wanted to give and go. But life is funny.


When we were in Columbia, Mo and I found out about our situation all I could think about was this Leukemia and Lymphoma Society. I still wasn’t sure what they did but it was a name that brought comfort. Family Services in Columbia mentioned L.L.S. and again it brought comfort. Why I’m not sure. But I think it was because the organization had the name of the disease in the title and I was certain they would know what I should do, because I wasn’t even sure how to spell leukemia. They would be there for us.


So we transfer to Children’s Mercy Hospital in Kansas City and our Family Service Counselor mentions L.L.S. again. Comforting again. But I never contacted L.L.S. So time goes by and I start coming out of the fog and I need help. I didn’t need financial or medical help but I needed to get out of the house and do something constructive. I needed someone to give me some light. I was still in the fog. So I made my mind up, I would call the L.L.S. and see if they had anything I could do to help their organization.


When I made that call I wasn’t sure what I was going to say. I may have called and hung up, but I finally made the call. I asked if there was anything I could do for the Society. My first call wasn’t what they could do but what could I do. I needed help and it was beyond the average help they’re use to giving. I needed to get out of the house and be productive.

Amy was the first person I had contact with and she listened to me. This simple act of listening was what I needed. It wasn’t a quick “I’ll transfer you” or “we’ll get back with you” but a sincere ear. After I was done mumbling, Amy suggested that I might be able to utilize my screens for an upcoming event. I agreed and we set up a meeting. If you don’t know what I do, I own a company that places TV Networks throughout the city in high traffic restaurants and nightclubs.

The event was Light the Night and Everest Cable had the video. So I made some calls and came up empty. I decided to call a connection at a media company that handles advertising sales for the cable industry. They looked into it and couldn’t locate the tape. My contact said she would do further investigating and call back.

In the mean time Becky from the L.L.S. called and said she located the tape. We would meet on Wednesday and make the hand off and formally meet. It was the start of a relationship. More importantly it got me moving and shaking again. It was a new start for me. The blessing was that the event was a few days away and I had to move quickly. I wanted to donate my time, product, or services. I would do anything to get moving and out of the hole I’d dug myself into.

Oddly enough, it was because of the first phone call that things started happening to my business almost immediately. The media company called back and said their boss wanted to talk to me about the digital signage business. He had watched me grow and was interested in the progress I’d made. They asked if I’d be interested in having a professional sales company take control of the ad sales.

Well from that initial call and first meeting there have been subsequent meetings and a partnership on the table for me and this media group. I am becoming partners with this multi-million dollar company and expansion is on the horizon. All this from my first call to Amy at the Leukemia and Lymphoma Society.

I truly believe that God works in mysterious ways. If I hadn’t made the call to the L.L.S. it would have never changed my situation. I made a decision to change things that day. I wasn’t going to collapse. Who better to call then an organization that had our disease in their name? Until you decide to help yourself you can’t expect anyone else to do it for you. That’s my story.