We almost made it out of CMH tonight. Kaylee almost set a best methatrexate release time. Almost. Our counts dropped low, but were just high. We are shooting for tomorrow. Kaylee has been doing everything to get home for Christmas. She is eating even though she doesn't want to. She is drinking a lot of fluids. She is reading and keeping out of the sick mode. Absolutely incredible to watch. She loves her brother.
I say that for a reason. She wants his Christmas day to be perfect. Her sickness will have to fight Kaylee to keep her from home on Christmas. Kaylee doesn't say it but she doesn't want this disease to mess with her brother. Such a strong sister to have. The lessons this experience will teach us will be extraordinary. To go where most never have to go is a priceless experience. A nail biting experience but worth grasping and squeezing. A squeeze so tight that it rings the lesson and reason out on the table.
I wonder where we will go as a family with this new found experience. Does Kaylee commit her life to great things? Will I become a better person, man, father? Does Tammie explore her purpose? Will Christian help other siblings? Who knows and who cares right now. We will take it day by day, and not focus on our future. Today is our blessing and I intend to enjoy my here and now, but tomorrow isn't far from my mind.
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