We received the news that we won't be going home. We have to stay until Kay can eat. We hope tomorrow but we agree that she needs to get her strength back before we leave. The snow cut my stay short at the hospital. I also had to get home for Christian because he has stayed home sick from school the last two days. I delivered some KFC to Tammie. We ate lunch together, Kaylee nibbled on some potatoes, then I left.
I struggled through the snow and ice to get home. We are holding down the fort while the girls are being held at the CMH lock down. I thank God that CMH is in Kansas City. I am 25 minutes away from front door and four floors away from Kay. The comfort of knowing we are so close, is priceless. We are on a wing of the hospital that is for bone marrow transplants. They are admitted for eight weeks. So our situation could be much worse.
Kaylee is holding up well. We had an incident this week that involved an area of the sickness that we've tried to overlook. Kaylee's cheerleader sisters are having a party this Saturday, she wasn't invited and it hurt. Kaylee says it doesn't hurt and I believe her. But we can't figure out why her coach, teammates, or one of the dozens of parents didn't mention it. I assume they think she is too sick or they just want Kaylee to focus on her recovery, but an invite would have been nice & huge. She is segregated from the friends she loves. Life is going on, as it should, but we have a kid who is living on the fourth floor of CMH and would like to be included. For future reference, we are all over this sickness, if we don't think Kay can go here or there we'll make that call, but please include my kid. We are concentrating on the health but Kay's social well being is important too. As a parent you want to let people know that an invitation or an occasional visit is OK. Kaylee is conscious and she's Kaylee. We just have a temporary roadblock and we'll be just fine. But as a parent you want your child to be included or atleast have an option to participate. This sickness is tough. The health, social, and spiritual aspect is very dynamic. We are learning as we go forward and I'm sure it's just as confusing for spectators. Just remember that it's Kay's health that has taken a detour, and not the fifteen year old spirit.
I struggled through the snow and ice to get home. We are holding down the fort while the girls are being held at the CMH lock down. I thank God that CMH is in Kansas City. I am 25 minutes away from front door and four floors away from Kay. The comfort of knowing we are so close, is priceless. We are on a wing of the hospital that is for bone marrow transplants. They are admitted for eight weeks. So our situation could be much worse.
Kaylee is holding up well. We had an incident this week that involved an area of the sickness that we've tried to overlook. Kaylee's cheerleader sisters are having a party this Saturday, she wasn't invited and it hurt. Kaylee says it doesn't hurt and I believe her. But we can't figure out why her coach, teammates, or one of the dozens of parents didn't mention it. I assume they think she is too sick or they just want Kaylee to focus on her recovery, but an invite would have been nice & huge. She is segregated from the friends she loves. Life is going on, as it should, but we have a kid who is living on the fourth floor of CMH and would like to be included. For future reference, we are all over this sickness, if we don't think Kay can go here or there we'll make that call, but please include my kid. We are concentrating on the health but Kay's social well being is important too. As a parent you want to let people know that an invitation or an occasional visit is OK. Kaylee is conscious and she's Kaylee. We just have a temporary roadblock and we'll be just fine. But as a parent you want your child to be included or atleast have an option to participate. This sickness is tough. The health, social, and spiritual aspect is very dynamic. We are learning as we go forward and I'm sure it's just as confusing for spectators. Just remember that it's Kay's health that has taken a detour, and not the fifteen year old spirit.
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