We just moved into our room. It took almost nine hours for the move. We sat in a room for hours waiting on our fourth floor check in. When the move orders came in we walked over with another family. Their little four year old girl was diagnosed today with leukemia. Four years old. She was laughs and giggles. Smiling from ear to ear. She doesn't know the torturous treatments that lay ahead. Her parents looked tired but in reality they've been hit hard today.
Newly diagnosed families are easy to pick out. They have every relative with them. Extended family comes to the side of the newly diagnosed. It brings back memories. Those first 30 days are blurry. I think it is the first few days that are very confusing. Then it settles and you find yourself trying to educate yourself about the battle that lays ahead. Then it starts to bring a routine for the sickness. Then you get into cancer mode. You start to realize that you are fighting that thing, that word that scares you - CANCER.
Tonight is hard. Kaylee is not in a good mood. She is short and borderline mean. I don't blame her. I get stressed about the check in, but can you imagine her feelings. She has to get poked and injected with poison for 5-7 days. Her appetite disappears and her health takes a hit. It is bad. So I understand. But separating the fact that she is sick and nasty is hard. I love her and I'll let her vent.
Tammie went home to pick up Christian. He is coming to the hospital to spend time with Kaylee. We usually do different shifts. I'll relieve Tammie in the morning and she does the nights. I get Christian off to school and Tammie is there at home when he gets off school. It's hard. Kaylee feels like there's always one person with her instead of the family. We dodge between who's here and who's there. Hospitalization is tough. Tough on everyone. But then again we are blessed that we can spend time and rotate schedules in a way that works for us. We are blessed. If Kaylee doesn't start acting nice, I might name my next blog "How to spank leukemia out of your child" Just playing!
Newly diagnosed families are easy to pick out. They have every relative with them. Extended family comes to the side of the newly diagnosed. It brings back memories. Those first 30 days are blurry. I think it is the first few days that are very confusing. Then it settles and you find yourself trying to educate yourself about the battle that lays ahead. Then it starts to bring a routine for the sickness. Then you get into cancer mode. You start to realize that you are fighting that thing, that word that scares you - CANCER.
Tonight is hard. Kaylee is not in a good mood. She is short and borderline mean. I don't blame her. I get stressed about the check in, but can you imagine her feelings. She has to get poked and injected with poison for 5-7 days. Her appetite disappears and her health takes a hit. It is bad. So I understand. But separating the fact that she is sick and nasty is hard. I love her and I'll let her vent.
Tammie went home to pick up Christian. He is coming to the hospital to spend time with Kaylee. We usually do different shifts. I'll relieve Tammie in the morning and she does the nights. I get Christian off to school and Tammie is there at home when he gets off school. It's hard. Kaylee feels like there's always one person with her instead of the family. We dodge between who's here and who's there. Hospitalization is tough. Tough on everyone. But then again we are blessed that we can spend time and rotate schedules in a way that works for us. We are blessed. If Kaylee doesn't start acting nice, I might name my next blog "How to spank leukemia out of your child" Just playing!
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